Welcome

the BPNSU is a web-based conduit for surveillance, research, disease registry and audit for consultant members of the British Paediatric Neurology Association.

THE CURRENT ACTIVE PROJECTS AND END DATES ARE LISTED BELOW

Click on the project name for more details

Title
25 Batten Disease (neuronal ceroid lipofuscinosis, any type)
27 PLAN (PLA2G6-associated Neurodegeneration): A Natural History Study
28 Study of PEHO syndrome and identification of the causative genetic defects
29 The UK Incidence and Prevalence of Inherited White Matter Disorders
30 Global Myoclonus Dystonia registry and non-motor symptoms study

Last updated APRIL 2018